Monday, January 31, 2011
Day 32
Today Zoe Hope is looking a little pale so will probably need a transfusion in the next 24 hours. She has had trouble with the breathing tube (doesn't like it but can't breath without it as yet). The doctors had to take more x-rays of her miniature lungs today just to see what was happening as she wasn't breathing with the tube she was breathing against it which meant she was pushing the oxygen out and hence her carbon dioxide levels were too high. They have added more pressure from the machine as her lungs were not inflating properly. She is now more settled.
Her feeds are now 2ml per hour so we are hoping to get her to put lots more weight on and be stronger for the next hurdles that come her way.
Keep going Zoe Hope you are certainly a strong little girl.
Her feeds are now 2ml per hour so we are hoping to get her to put lots more weight on and be stronger for the next hurdles that come her way.
Keep going Zoe Hope you are certainly a strong little girl.
Sunday, January 30, 2011
Day 31
Zoe Hope is 1 month old today, wow what a ride she has take us on. Slowly but surely Zoe Hope is getting better with regards to feeding and ventilation, baby steps divided by 10. It is still early days and we pray and trust that she will continue on this track for as long as possible.
What made today even more exiting for mom and dad is that we were able to 'bath' Zoe Hope (all inside the humidity crib with wet cloths). It took us around 45 minutes to do the wash and change the bedding, everything needs to happen in sync to ensure Zoe Hope stays stable and the tube does not move or pull out.
We also measured Zoe Hope to 31cm in length and 22.5mm head circumference with her latest weight at 735 she has made good ground in the past 7 days.
Well done Zoe Hope!
What made today even more exiting for mom and dad is that we were able to 'bath' Zoe Hope (all inside the humidity crib with wet cloths). It took us around 45 minutes to do the wash and change the bedding, everything needs to happen in sync to ensure Zoe Hope stays stable and the tube does not move or pull out.
We also measured Zoe Hope to 31cm in length and 22.5mm head circumference with her latest weight at 735 she has made good ground in the past 7 days.
Well done Zoe Hope!
Saturday, January 29, 2011
Day 30
This morning Zoe Hope was restful and looking cute in another pink beanie.
She is now having 1.5 mls of milk per hour and tolerating it at present.
Her weight today is 735grams which is a gain of 55 grams since Monday's weigh in.
She will be off the morphine totally tomorrow so we hope to catch her eyes open a little more.
Today she has been changed over to the SIMV (this ventilator will allow her to work hard when she can rather than do all the breathing). Please pray she copes this time and settles into her own strong breathing pattern. GO ZOE HOPE !
Zoe Hope has a new room mate (4th one) a 32 weeker named Pyper. Pyper and her family gave Zoe Hope her first ever Teddy (PINK). Pink the bear is huge next to Zoe Hope but will look over her crib when we are not there.
Keep praying that Zoe Hope remains strong, attempts all challenges put before her and continues to tolerate the milk. We are filling the chest freezer very quickly - come on Zoe Hope you can do it!.
She is now having 1.5 mls of milk per hour and tolerating it at present.
Her weight today is 735grams which is a gain of 55 grams since Monday's weigh in.
She will be off the morphine totally tomorrow so we hope to catch her eyes open a little more.
Today she has been changed over to the SIMV (this ventilator will allow her to work hard when she can rather than do all the breathing). Please pray she copes this time and settles into her own strong breathing pattern. GO ZOE HOPE !
Zoe Hope has a new room mate (4th one) a 32 weeker named Pyper. Pyper and her family gave Zoe Hope her first ever Teddy (PINK). Pink the bear is huge next to Zoe Hope but will look over her crib when we are not there.
Keep praying that Zoe Hope remains strong, attempts all challenges put before her and continues to tolerate the milk. We are filling the chest freezer very quickly - come on Zoe Hope you can do it!.
Friday, January 28, 2011
Day 29
Zoe Hope has been resting well today.
She is doing well with her feeds and now has 1ml of milk per hour. Hopefully this will continue.
She is still stable on the ventilator and we are hoping that as the morphine is lowered over the weekend she will be up for the challenge of trying a ventilator that requires Zoe Hope to breath more unassisted. Anyway the Doctors will see how she goes and challenge her when able.
She looked so cute today with a pink beanie on. A real girl. I was able to do her CARES again today so checked her temperature, cleaned her eyes, mouth, and changed her bottom. She still doesn't like handling at this time so I sang to her.
"Butterfly Kisses to my little girl" can't wait to give her a real kiss when she is stronger!
She is doing well with her feeds and now has 1ml of milk per hour. Hopefully this will continue.
She is still stable on the ventilator and we are hoping that as the morphine is lowered over the weekend she will be up for the challenge of trying a ventilator that requires Zoe Hope to breath more unassisted. Anyway the Doctors will see how she goes and challenge her when able.
She looked so cute today with a pink beanie on. A real girl. I was able to do her CARES again today so checked her temperature, cleaned her eyes, mouth, and changed her bottom. She still doesn't like handling at this time so I sang to her.
"Butterfly Kisses to my little girl" can't wait to give her a real kiss when she is stronger!
Thursday, January 27, 2011
Day 28
Hi All,
Zoe has gained a little weight all the way up to 680g approximately. Doctors have also increased her feeds to 1ml per hour which is great news and she is tolerating the milk.
With regards to ventilation she has been stable for the last three days with no drastic changes. It may feel to us that she is not making any progress but with the feeds going well and the stable ventilation she may very well be gaining the strength she requires for the next attempt to extubate.
Again we thank you all for your support, family, friends, work, nurses and all the rest.
Zoe has gained a little weight all the way up to 680g approximately. Doctors have also increased her feeds to 1ml per hour which is great news and she is tolerating the milk.
With regards to ventilation she has been stable for the last three days with no drastic changes. It may feel to us that she is not making any progress but with the feeds going well and the stable ventilation she may very well be gaining the strength she requires for the next attempt to extubate.
Again we thank you all for your support, family, friends, work, nurses and all the rest.
Wednesday, January 26, 2011
Day 27
Little Zoe Hope was very quite today (Australia Day), she was sleeping on her tummy this morning with her head covered to keep the light out and all we could see was a little (froggy) leg kicking. Tonight again she was covered up but we could at least see her left leg wiggling now and again. Over all not a very eventfull day.
This little gum leaf is just like you,
little bit fragile, but quite string too.
holding on through thick and thin,
all that Aussie power withing.
The lovely nurses and doctors
in the Westmead hospital Centre
for Newborn care helped you
celebrate Australia Day 2011
(This messsage with a Gum Leaf was placed inside Zoe Hope's Special book by one of her caring nurses today).
This little gum leaf is just like you,
little bit fragile, but quite string too.
holding on through thick and thin,
all that Aussie power withing.
The lovely nurses and doctors
in the Westmead hospital Centre
for Newborn care helped you
celebrate Australia Day 2011
(This messsage with a Gum Leaf was placed inside Zoe Hope's Special book by one of her caring nurses today).
Tuesday, January 25, 2011
Day 26
Zoe Hope remains to be strong and challenge the Doctors and Nurses yet again. She is getting milk every 4 hours still and has continued to have good nappies. Papa even changed one today during CARES time.
Zoe Hope spent time on her tummy today and looked as though she was 'snug as a bug'. We had a closer look at her hair today and both think it is strawberry blonde. She has lots of it so hope she keeps it.
Zoe Hope still has a long way to go. She really needs to begin to breath on her own more and not rely on the ventilator.
Thank you for your warm messages. Please continue to pray for our daughter.
Zoe Hope spent time on her tummy today and looked as though she was 'snug as a bug'. We had a closer look at her hair today and both think it is strawberry blonde. She has lots of it so hope she keeps it.
Zoe Hope still has a long way to go. She really needs to begin to breath on her own more and not rely on the ventilator.
Thank you for your warm messages. Please continue to pray for our daughter.
Monday, January 24, 2011
Day 25
Hi All,
Zoe Hope seems to be coping OK with the new ventilator. She has lost a bit of colour due to all the blood samples and she will probably get a blood transfusion soon. We are hoping that they will start feed again by tomorrow.
Donating blood is something most of us can do and due to the shortages in Australia I'd urge you all to become a regular blood doner.
Zoe Hope seems to be coping OK with the new ventilator. She has lost a bit of colour due to all the blood samples and she will probably get a blood transfusion soon. We are hoping that they will start feed again by tomorrow.
Donating blood is something most of us can do and due to the shortages in Australia I'd urge you all to become a regular blood doner.
Sunday, January 23, 2011
Isaiah 40: 29-31
He gives strength to the weary and increases
the power of the weak. Even youths grow
tired and weary, and young men stumble
and fall; but those who hope in the Lord
will renew their strength.
They will soar of wings like eagles; they will run
and not grow weary, they will walk and not
be faint.
the power of the weak. Even youths grow
tired and weary, and young men stumble
and fall; but those who hope in the Lord
will renew their strength.
They will soar of wings like eagles; they will run
and not grow weary, they will walk and not
be faint.
Day 24
Today was a big day for Zoe Hope as doctors tried to extubate Zoe (extracting the breathing tube running through her mouth and into her lungs) and move her over to a CPAP (continuous positive airway pressure) ventilator. Unfortunately Zoe only managed 30 minutes with the little tubes in her nose before doctors decided to re-intubate (new tube down to the lungs). They have however moved to a ventilator which they can use the CPAP ventilation technique with the intubated tube. Over all I suppose this is not a step back as Zoe Hope has improved on the pressures required and stability for now.
Zoe Hope well done today my girl!
Zoe Hope well done today my girl!
Saturday, January 22, 2011
Day 23
Zoe Hope today has begun to get her bowel moving again Hooray! they will up her milk to 1ml per 4hours and see how she tolerates it.
They are hoping to continue weening the oxygen levels today from the ventilator and hence attempt another ventilator in the next 36 hours. The change of ventilator will mean that Zoe Hope will not need to be sedated and will need to work more on her own breathing. In the past two days we have seen her attempting to breath a lot more.
Her lungs have shown improvement from her last scan so we are hoping that Zoe Hope will begin to move forward and begin using both lungs equally.
It is still early days and the doctors keep reminding us that she is so susceptible to infections which will set her back again so please continue to pray.
Remember to blow a kiss when you see a butterfly. It is amazing how many we have seen in the past week.
They are hoping to continue weening the oxygen levels today from the ventilator and hence attempt another ventilator in the next 36 hours. The change of ventilator will mean that Zoe Hope will not need to be sedated and will need to work more on her own breathing. In the past two days we have seen her attempting to breath a lot more.
Her lungs have shown improvement from her last scan so we are hoping that Zoe Hope will begin to move forward and begin using both lungs equally.
It is still early days and the doctors keep reminding us that she is so susceptible to infections which will set her back again so please continue to pray.
Remember to blow a kiss when you see a butterfly. It is amazing how many we have seen in the past week.
Friday, January 21, 2011
Day 22
Hi All,
Zoe has improved slightly over the past 24 hours with regards to her oxygen levels. She is back on 1ml every 6 hours of milk and we are hoping she will tolerate the milk. Today mom got to wipe her hair and tummy whiles she was in the crib and she did not like this at all. Mom also got to see her yawn and cry, even though the cry has no sound. Zoe's head circumference has increased with 2mm since birth. Over all Zoe has improved slightly and we are happy keeping in mind this is a roller coaster ride.
ps. Thanks to the staff and nurses at Westmead and all your support.
Zoe has improved slightly over the past 24 hours with regards to her oxygen levels. She is back on 1ml every 6 hours of milk and we are hoping she will tolerate the milk. Today mom got to wipe her hair and tummy whiles she was in the crib and she did not like this at all. Mom also got to see her yawn and cry, even though the cry has no sound. Zoe's head circumference has increased with 2mm since birth. Over all Zoe has improved slightly and we are happy keeping in mind this is a roller coaster ride.
ps. Thanks to the staff and nurses at Westmead and all your support.
Thursday, January 20, 2011
Day 21
Today Zoe Hope has been sleeping lots which is good for her. She still likes to be in certain positions and can wiggle herself into comfort even if it is a little bit. Her oxygen percent has been lower although when she is moved it rises again (this is controlled by the ventilator in which the nurses and doctors turn knobs to control its functions. She is wearing the soft material shades to keep the light away from her eyes. The doctors are still testing for another infection at present as her lungs continue to struggle. Her colour is good today and her blood pressure is stable.
Thank you again to all of you for your continued support and messages.
Thank you again to all of you for your continued support and messages.
Wednesday, January 19, 2011
Day 20
Zoe Hope has not made any significant progress since yesterday. Her right lung is still struggling. The new medicine was started and she will now continue a 24hourly dose from tonight. Hopefully we will see her lungs respond to this. When I visited her today she was awake and looking up at me with her bottom lip quivering. All I could do was try to calm her with my voice. She is a real trooper. Butterfly kisses to our little girl. :-)
Jeremiah 29v11
"For I know the plans for you" declares the LORD, "plans to prosper you and not harm you, plans to give you hope and a future.
My Personal Prayer
God grant me the strength to handle life's challenges,
In order to overcome these life long obstacles.
God grant me the courage to stand up for what I believe in,
In order to express my true opinions without fear.
God grant me the answers to my questions,
In order to find some understanding.
God grant me the piece of mind I so desperately need,
In order to remain sane in this inside universe.
God grant me the patience I thought I once had,
In order to with stand everything thrown to me.
God grant me the guidance to be able to succeed,
In order to be whatever it is I want to be.
God I need you now and forever, please help me.
Author: Angie Flores
God grant me the strength to handle life's challenges,
In order to overcome these life long obstacles.
God grant me the courage to stand up for what I believe in,
In order to express my true opinions without fear.
God grant me the answers to my questions,
In order to find some understanding.
God grant me the piece of mind I so desperately need,
In order to remain sane in this inside universe.
God grant me the patience I thought I once had,
In order to with stand everything thrown to me.
God grant me the guidance to be able to succeed,
In order to be whatever it is I want to be.
God I need you now and forever, please help me.
Author: Angie Flores
Tuesday, January 18, 2011
Day 19
Zoe Hope has had an up and down day today. She is still not really responding with the new ventilator. Zoe Hope is very particular on where she likes to be positioned and if the nurses or doctors move her away from her comfort she plays up and sends the machines into turmoil along with mum and dad and her wonderful nurses and doctors. Well at least she has a spark within her tiny self.
Today the arterial line failed so they have attempted to insert another with out success so will try again later tonight. The PDA duct has again closed clinically for the third time now (we hope it remains closed as this tends to set her back each time it reopens).
Her lungs are still struggling and so tonight Zoe Hope will be given some medicine to help boost them and hopefully make them stronger. It is intended that this medicine will be given over ten days. Please continue to pray that Zoe Hope responds to the new interventions. She certainly is a little fighter but has gone through so much for someone so tiny.
Thank you to all of you who continue to pray, send messages and help out when needed. The best support we could have is through your prayers and love.
Today the arterial line failed so they have attempted to insert another with out success so will try again later tonight. The PDA duct has again closed clinically for the third time now (we hope it remains closed as this tends to set her back each time it reopens).
Her lungs are still struggling and so tonight Zoe Hope will be given some medicine to help boost them and hopefully make them stronger. It is intended that this medicine will be given over ten days. Please continue to pray that Zoe Hope responds to the new interventions. She certainly is a little fighter but has gone through so much for someone so tiny.
Thank you to all of you who continue to pray, send messages and help out when needed. The best support we could have is through your prayers and love.
Monday, January 17, 2011
Day 18
Hi All,
The day started early with a call from the Nicu unit just after midnight. Zoe Hope's blood pressure had dropped drastically and she required very high levels of oxygen to keep going. 'Lexi' who lives close by was able pop over and look after Henry within five minutes. That gave us the opportunity to rush over to be with Zoe Hope. We stayed by her side and read her stories about courage and strength and placed our hand on her tiny head for comfort. All though still fragile Zoe Hope stabilised by 11 am, but doctors have reminded us that things could change very fast (the so called 'roller coaster ride').
The day started early with a call from the Nicu unit just after midnight. Zoe Hope's blood pressure had dropped drastically and she required very high levels of oxygen to keep going. 'Lexi' who lives close by was able pop over and look after Henry within five minutes. That gave us the opportunity to rush over to be with Zoe Hope. We stayed by her side and read her stories about courage and strength and placed our hand on her tiny head for comfort. All though still fragile Zoe Hope stabilised by 11 am, but doctors have reminded us that things could change very fast (the so called 'roller coaster ride').
Sunday, January 16, 2011
Day 17
Hi all,
Zoe Hope continues to amaze us all with her strength and fight to survive.
She is stable on the new ventilator for now however continues to require high levels of oxygen.
The PDA duct has again re opened for the third time as of yesterday and hence doctors are administering her with the appropriate medicine. Due to her extreme prematurity we are told this can happen again.
She is again nil by mouth due to being given a new breathing tube. All limbs now have some form of line or cannular in for medicine so she isn't as free to move. Zoe's tummy is reflecting the medical changes and we are we pray it will come good so she can have milk again.
We pray for strength whilst on this journey with Zoe Hope and also pray that she continues to thrive and begins to respond positively to the medical interventions being put upon such a tiny being "Our Daughter".
Zoe Hope continues to amaze us all with her strength and fight to survive.
She is stable on the new ventilator for now however continues to require high levels of oxygen.
The PDA duct has again re opened for the third time as of yesterday and hence doctors are administering her with the appropriate medicine. Due to her extreme prematurity we are told this can happen again.
She is again nil by mouth due to being given a new breathing tube. All limbs now have some form of line or cannular in for medicine so she isn't as free to move. Zoe's tummy is reflecting the medical changes and we are we pray it will come good so she can have milk again.
We pray for strength whilst on this journey with Zoe Hope and also pray that she continues to thrive and begins to respond positively to the medical interventions being put upon such a tiny being "Our Daughter".
Saturday, January 15, 2011
Day 16
Hi All,
The new high frequency ventelator is working well and has stabilized Zoe Hope. They have increased her milk intake to 1ml every 2 hours, Zoe is tollerating the milk and 'hope' fully we can get our third nappy soon. Zoe Hope's current weight is 569g (1 pound 4 ounces).
The new high frequency ventelator is working well and has stabilized Zoe Hope. They have increased her milk intake to 1ml every 2 hours, Zoe is tollerating the milk and 'hope' fully we can get our third nappy soon. Zoe Hope's current weight is 569g (1 pound 4 ounces).
Friday, January 14, 2011
Day 15
Hi all,
We've had a couple of set backs today however this evening Zoe has been placed on a new ventilator which will hopefully see her stabilise better with less pressure on her already fragile lungs.
She was wearing a white beanie tonight and looked very cute even though the new machine is huge and noisy.
We pray that God will allow her to have a restful night and begin to pick up tomorrow so that she can have less intervention and more milk.
We are amazed at the technology available and also the fantastic expertise of our Doctors and Nurses at Westmead.
Zoe Hope is in very capable hands and again we are blessed for the care she is receiving whilst in NICU.
:-)
We've had a couple of set backs today however this evening Zoe has been placed on a new ventilator which will hopefully see her stabilise better with less pressure on her already fragile lungs.
She was wearing a white beanie tonight and looked very cute even though the new machine is huge and noisy.
We pray that God will allow her to have a restful night and begin to pick up tomorrow so that she can have less intervention and more milk.
We are amazed at the technology available and also the fantastic expertise of our Doctors and Nurses at Westmead.
Zoe Hope is in very capable hands and again we are blessed for the care she is receiving whilst in NICU.
:-)
Thursday, January 13, 2011
Zoe is now 2 weeks old, she is still fighting a nasty lung infection with the help of very specific antibiotics.As you can see in the picture she has her first nappy on and a beautiful pink beannie (thanks to the volunteer who knitted it). Zoe's lung is still collapsed however she is stable. She has quite a lot of different medicines to help in her care. Today was the first time we were shown how to do Zoe's Cares. This involved cleaning her eyes, mouth, putting vasaline on her lips and changing her bottom.
Your messages have been so encouraging to us. We have had some real lows over the past days and know that this is just the beginning. Thank you for having us in your thoughts and prayers.
:-)
Wednesday, January 12, 2011
Day 13
Hi All,
Zoe's duct (pda) has closed up today and there is no need for further medication for it.
On the down side it looks like she has a infection of some sort in her chest we are not yet sure. We hope that the antibiotics doctors have started will help clear it up in the next 48 hours and that Zoe will bounce back strongly.
:-)
Zoe's duct (pda) has closed up today and there is no need for further medication for it.
On the down side it looks like she has a infection of some sort in her chest we are not yet sure. We hope that the antibiotics doctors have started will help clear it up in the next 48 hours and that Zoe will bounce back strongly.
:-)
Day 13
Today Zoe Hope remains to be stable. There is no change from yesterday. Both Doctors and nurses are keeping her very quiet with the help of medicine. She is still nil by mouth but gets a range of vitamins etc to keep her healthy.
Zoe Hope will have some more medicine today to help the duct above her heart close.
They have changed all their procedures so that she has less handling, light and noise.
Please continue to pray that she keeps up her fighting spirit. Her lungs need to get stronger. She is still needing so much oxygen to help her with her breathing.
Zoe Hope will have some more medicine today to help the duct above her heart close.
They have changed all their procedures so that she has less handling, light and noise.
Please continue to pray that she keeps up her fighting spirit. Her lungs need to get stronger. She is still needing so much oxygen to help her with her breathing.
Tuesday, January 11, 2011
Day 12
Hi all,
Doctors were able to insert an arterial line into Zoe's right arm earlier this afternoon. This has enabled them to remove the umbilical cord arterial line and we are hoping that Zoe can resume with mom's milk over the next few days. She was also able to spend some time on her tummy which is good for her lungs and bowl. We are embracing all your support, messages, calls and help.
Doctors were able to insert an arterial line into Zoe's right arm earlier this afternoon. This has enabled them to remove the umbilical cord arterial line and we are hoping that Zoe can resume with mom's milk over the next few days. She was also able to spend some time on her tummy which is good for her lungs and bowl. We are embracing all your support, messages, calls and help.
Day 11
Zoe Hope continues to keep strong.
She continues to be very restless and doesn't like being on her back. The Doctors and Nurses are reminding us that she is still so extremely premature and hence needs to rest 24/7.
We were able to sit with her for a long period this morning however had to be pin drop quiet. Too much light and movement around her is making her require more oxygen.
She is having a few medical procedures today so we are hoping that the arterial line will be successfully moved. They have again put her back on full ventilation support as she needs to rest. Her lungs still need to get stronger. PLEASE PRAY!
She is back on the medicine to close the valve above her heart and will get a new cannula today.
We are still praying that God will continue to keep Zoe Hope strong and stable.
I found this prayer in the P.O. yesterday so would like to share it with you all as we have with Zoe Hope.
I Said A Prayer For you today
I said a prayer for you today
And I know God must have heard
I felt the answer in my heart
Although he spoke no word
I didn't ask for wealth or fame
I knew you wouldn't mind
I asked him to send treasures
Of a far more lasting kind
I asked that He would be near you
At the start of each new day
To grant you health and blessings
And friends to share the way
I asked for happiness for you
In all things great and small
But it was for His loving care
I prayed the most of all
Pocket Inspirations 2008
ZOE HOPE you are in our hearts and thoughts we love you so dearly.
Hang in there baby girl.
:-)
She continues to be very restless and doesn't like being on her back. The Doctors and Nurses are reminding us that she is still so extremely premature and hence needs to rest 24/7.
We were able to sit with her for a long period this morning however had to be pin drop quiet. Too much light and movement around her is making her require more oxygen.
She is having a few medical procedures today so we are hoping that the arterial line will be successfully moved. They have again put her back on full ventilation support as she needs to rest. Her lungs still need to get stronger. PLEASE PRAY!
She is back on the medicine to close the valve above her heart and will get a new cannula today.
We are still praying that God will continue to keep Zoe Hope strong and stable.
I found this prayer in the P.O. yesterday so would like to share it with you all as we have with Zoe Hope.
I Said A Prayer For you today
I said a prayer for you today
And I know God must have heard
I felt the answer in my heart
Although he spoke no word
I didn't ask for wealth or fame
I knew you wouldn't mind
I asked him to send treasures
Of a far more lasting kind
I asked that He would be near you
At the start of each new day
To grant you health and blessings
And friends to share the way
I asked for happiness for you
In all things great and small
But it was for His loving care
I prayed the most of all
Pocket Inspirations 2008
ZOE HOPE you are in our hearts and thoughts we love you so dearly.
Hang in there baby girl.
:-)
Monday, January 10, 2011
Day 10
Hi All,
Zoe Hope has taken a few steps backward in the last 24 hours and we are hoping she will overcome these hurdles soon.
Zoe Hope has taken a few steps backward in the last 24 hours and we are hoping she will overcome these hurdles soon.
Day 10
Zoe continues to show strength. She has had some set backs in the last 24 hours. A valve just outside her heart has re opened so hopefully a round of medicine will assist in closing it again. This is not uncommon for her age.
Zoe is still not back on feeds. They are trying to keep her well rested which means no stories or hand holding for the moment as she needs to build up her reserves to continue her strength to fight.
She is opening her eyes a little more which is marvellous to see.
She is ultra sensitive to noise and light and this makes her need a higher content of oxygen so they are also trying to minimise these things.
Doctors and nurses continue to be supportive and realistic with the focus being one day at a time.
Her lungs are fragile with one being collapsed and her needing more pressure from the ventilator this is where your prayers are needed.
:-) Thank you for all your messages, prayers, emails, sms, letters and even candle lighting.
Zoe Hope sure has a cheer squad. xo
Zoe is still not back on feeds. They are trying to keep her well rested which means no stories or hand holding for the moment as she needs to build up her reserves to continue her strength to fight.
She is opening her eyes a little more which is marvellous to see.
She is ultra sensitive to noise and light and this makes her need a higher content of oxygen so they are also trying to minimise these things.
Doctors and nurses continue to be supportive and realistic with the focus being one day at a time.
Her lungs are fragile with one being collapsed and her needing more pressure from the ventilator this is where your prayers are needed.
:-) Thank you for all your messages, prayers, emails, sms, letters and even candle lighting.
Zoe Hope sure has a cheer squad. xo
Sunday, January 9, 2011
Day 9
Well today Zoe Hope continues to amaze us all.
She has finally used her bowels and that was a big hurdle to overcome for her. Her tummy looks a lot more at rest and not so swollen. Jan who normally dry reaches at the sight or smell of poo even looked for the nappy. Both proud of her today overcoming something we all take for granted.
Her feeds are still on hold as they will again attempt to move the arterial line away from her belly button and place it elsewhere within the next 24hours. Please pray for this next hurdle.
Zoe is now trying to open her eyes just the slightest and it brought tears to our eyes. She is very sensitive to noise however the singing of nursery rhymes seems to be of comfort.
The boys continue to blow butterfly kisses to Zoe Hope.
Thank you for your encouraging messages and prayers.
Thank you God for being with us on this journey with Zoe Hope and may you continue to give us all strength.
:-)
She has finally used her bowels and that was a big hurdle to overcome for her. Her tummy looks a lot more at rest and not so swollen. Jan who normally dry reaches at the sight or smell of poo even looked for the nappy. Both proud of her today overcoming something we all take for granted.
Her feeds are still on hold as they will again attempt to move the arterial line away from her belly button and place it elsewhere within the next 24hours. Please pray for this next hurdle.
Zoe is now trying to open her eyes just the slightest and it brought tears to our eyes. She is very sensitive to noise however the singing of nursery rhymes seems to be of comfort.
The boys continue to blow butterfly kisses to Zoe Hope.
Thank you for your encouraging messages and prayers.
Thank you God for being with us on this journey with Zoe Hope and may you continue to give us all strength.
:-)
Saturday, January 8, 2011
Day 8
Today Zoe Hope has had a good day. She was sleeping during both our visits today.
Her right lung has improved and hence is no longer collapsed. She has had all milk ceased for 24hours in the hope that her tummy relaxes enough to get her bowel moving. This is a big issue for her at present.
Her current weight is 515grams.
Zoe Hope did do some athletic stretching today with both legs in the air. We even changed her cotton ball (nappy).
Henry was most intrigued during his visit today and we again read some nice stories and sang to her.
She is so peaceful to watch when sleeping.
Both the nurses and doctors at NNIC are fabulous and supportive when we visit.
Thank you for your continued prayers and support.
:-)
Her right lung has improved and hence is no longer collapsed. She has had all milk ceased for 24hours in the hope that her tummy relaxes enough to get her bowel moving. This is a big issue for her at present.
Her current weight is 515grams.
Zoe Hope did do some athletic stretching today with both legs in the air. We even changed her cotton ball (nappy).
Henry was most intrigued during his visit today and we again read some nice stories and sang to her.
She is so peaceful to watch when sleeping.
Both the nurses and doctors at NNIC are fabulous and supportive when we visit.
Thank you for your continued prayers and support.
:-)
Friday, January 7, 2011
Day 7
Hi All,
Zoe Hope continues to be strong and is in a stable condition today. We read her a few stories today and mom sang her a few songs.
Doctors tried without success to put a arterial line into Zoe's left foot. They will try again tomorrow. If this is successfull they can remove the arterial line in her belly button.
Thanks for all the messages and prayers
Zoe Hope continues to be strong and is in a stable condition today. We read her a few stories today and mom sang her a few songs.
Doctors tried without success to put a arterial line into Zoe's left foot. They will try again tomorrow. If this is successfull they can remove the arterial line in her belly button.
Thanks for all the messages and prayers
Thursday, January 6, 2011
Day 6, Evening
Zoe was kicking with amazing strength against my fingers tonight.We really love your Zoe Hope
Look how well she tries to cope
She continues to enthral
So much joy from one so small
By John Adcock
Day 6
Dear all,
Zoe had a set back today (last night), though she is still 'stable' and we are hoping she will bounce back soon. One step forwards then one step back. I'll post a photo soon.
Thanks for all your support!
Regards
Zoe had a set back today (last night), though she is still 'stable' and we are hoping she will bounce back soon. One step forwards then one step back. I'll post a photo soon.
Thanks for all your support!
Regards
Wednesday, January 5, 2011
Day 5
Hi all,
Zoe Hope is still in a stable (but critical) condition. She has gained weight back in the fluids she has lost. If all goes well they will increase her milk rations to 1 ml every 3 hours.
She has to undergo a few medical procedures today, and we pray that they will make the coming days easier on her.
Regards
Mom, Dad and kids
Zoe Hope is still in a stable (but critical) condition. She has gained weight back in the fluids she has lost. If all goes well they will increase her milk rations to 1 ml every 3 hours.
She has to undergo a few medical procedures today, and we pray that they will make the coming days easier on her.
Regards
Mom, Dad and kids
Hope
Mom found this, its great!
What Is Hope?
Hope is bright shining light which keeps darkness at bay
Hope is the gentle cold breeze on a hot summer day
Hope is to remain positive when going gets tough
Hope is seeking more when others think you had enough
Hope is dreaming of tomorrow
Hope is simmering under sorrow
Hope is sparkles when tears in our eyes
Hope is a beautiful thing & beautiful things never dies
Hope is as light as a feather
Hope keeps all of us together
Hope is ubiquitous and free of cost
Hope is the last thing ever lost.....
By Andy Falkenburg
What Is Hope?
Hope is bright shining light which keeps darkness at bay
Hope is the gentle cold breeze on a hot summer day
Hope is to remain positive when going gets tough
Hope is seeking more when others think you had enough
Hope is dreaming of tomorrow
Hope is simmering under sorrow
Hope is sparkles when tears in our eyes
Hope is a beautiful thing & beautiful things never dies
Hope is as light as a feather
Hope keeps all of us together
Hope is ubiquitous and free of cost
Hope is the last thing ever lost.....
By Andy Falkenburg
Tuesday, January 4, 2011
Day 4
Hi All,
Zoe Hope is still in a stable condition, we had a few small set backs overnight though not serious at this stage. The doctors have increased her feeding from 1 ml every 6 hours to 1 ml every 4 hours.
Thank you for your prayers
Zoe Hope is still in a stable condition, we had a few small set backs overnight though not serious at this stage. The doctors have increased her feeding from 1 ml every 6 hours to 1 ml every 4 hours.
Thank you for your prayers
Monday, January 3, 2011
Day 3.1
Just got back from a visit to Zoe Hope, all is fine for now, she has now had 2 doses of milk, 1ml every 6 hours.
Day 3
Hi all,
Thanks for all the calls and messages and our apologies if we have not taken your call or have not called back.
Zoe is still in a stable condition for the moment and we are hoping that she can have her first millilitre of milk today.
Keep praying for Zoe Hope and thank you for all your support and love
Cheers Jan, Mandi, Tyler, Henry and Zoe Hope
Thanks for all the calls and messages and our apologies if we have not taken your call or have not called back.
Zoe is still in a stable condition for the moment and we are hoping that she can have her first millilitre of milk today.
Keep praying for Zoe Hope and thank you for all your support and love
Cheers Jan, Mandi, Tyler, Henry and Zoe Hope
Sunday, January 2, 2011
Zoe Hope's book
This is page one from Zoe Hope's scrap book thanks to the wonderfull nurses at Westmead NN care unitSaturday, January 1, 2011
the morning after
All is ok for now, Mandi is getting stronger and finally had a little bit of sleep. Zoe is also doing well and has some very good nurses looking after her 24/7
11 hours later
Zoe and mum is doing fine at this stage.
Mum is having a well deserved snooz after three very long days. Zoe, well she is in good hands and is doing great for now.
Mum is having a well deserved snooz after three very long days. Zoe, well she is in good hands and is doing great for now.
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