Hi,
Zoe is still looking beautiful in her little dress, even though it’s the smallest one they have it’s still a few sizes too big. She was resting well this afternoon when we visited. She has also had a good go at the dummy in the last few days even though it does not really fit in between the tubes and all.
Doctors will again start tonight with medication to boost her lungs in an attempt to transfer Zoe Hope from the Tube ventilator (sippv/simv) to a nose probe (c-pap) type ventilator in the next 48 hours. The C-pap ventilator causes less damage and removes the immediate danger of the tube inserted all the way to the lungs. This is critical due to the state of Zoe Hope’s tiny and damaged lungs. It has again been pointed out that even Zoe Hope seems stable that the CLD (Chronic lung disease) Zoe has is of an extreme nature.
Your thoughts and prayers are with her.
Julle bly in ons gebede. Zoe is so 'n wonderwerkie, en ons bid dat God haar en julle hierdeur sal dra!
ReplyDeleteGood morning-My name is susanna walker and you don't know me but I work with Nina Oosthuizen in Wollongong. My 3rd child Sarah was born 10/2/08 6 weeks early in critical respiratory distress. Initially the doctors thought it was just because she hadn't made any surfactant to help her lungs stay open yet. They quickly realised it was much more serious than that and she was airlifted to RHW Randwick where she spent 2 months on every bit of equipment they had, and then another month back in Wollongong Hospital. As it turns out she has an extremely rare lung disease, and has been in hospital so many times since then we have lost count. We had been given THE TALK by the doctors telling us there was nothing more they could do, and yet she continues to amaze us with her spirit every day. She is on nasal cannula oxygen 24hrs/day even now at almost 3 years old and starts preschool next week!We still don't know what will happen in the future and whether she will need a lung transplant. I guess I just wanted to let you know that I am thinking of you, and reading about Zoe each day brings back many memories. I wish you all strength and courage and keep a special palce in my heart for tiny Zoe. Miracles can happen.
ReplyDeleteAll my love
Susanna x (dswalk16@tpg.com.au)
PS If you need to talk I am always here:)